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Published on December 22, 2005 By dharmagrl In Misc

I'm off to see Dr Tabakian this morning to see what he can do to help me with the neuropathic pain I've been left with since the spinal fusion surgery.

I'm a bit scared, to be honest. I'm afraid that he's going to say "there's nothing I can do, go home" and that I'll have to live like this for the rest of my days.

Having said that....I do have confidence in his abilities.  He's the Director of Anesthesiology at St Louis University Hospital and has credentials out the wazoo.  I was expecting him to be from Pakistan with a last name like his, but he's not.  He's Lebanese; he went to med school in Beruit and then moved to Baltimore to finish up his Professor-ship (don't know the right word for that, sorry!).

So, I've come to the conclusion that my fear is just me doing my usual 'doom and gloom' routine.  I do that a lot; I think it comes from being let down time after time in the past.  I've just got so used to disappointment that I automatically think the worst case scenario will happen so I won't be disappointed again.  It's a defense mechanism, and it's a crappy one.....it's something that I really ought to work on but I simply don't have the mental fortitude to do that right now.  Things are better than they were 3 weeks ago; I don't wake up to daylight and get that sinking feeling and I'm not going days without eating or taking a shower.....but I'm still feeling a bit fragile.  There are people who have helped me along the way, and they know who they are (M, K, LW, P, D and T - Thank you all so much for being kind and gentle with me, for being there when I needed an ear and for kicking me in the rear when you thought I needed it too) and they've helped enormously. 

Anyway, JU, I'm going to go shower, and then D and I are loading up in the Explorer and heading into town to see Dr Tabakian and his bag o' tricks.  Hopefully he'll have something in there for me.....


Comments
on Dec 22, 2005
Best of luck! What happened to the Duragesic patch?
on Dec 22, 2005
I certainly hope this can help your pain.
on Dec 22, 2005

Hope everything goes well!  I know the feeling of not wanting to go to a Dr. because you feel like they'll just say there isn't anything to help you with.  But, now and then, you get a good Dr. and they give you some relief.  I hope this is one of those times for you.

 

on Dec 22, 2005
Praying you find not only answers, but also relief from your pain. ((((((((((((((((((K))))))))))))))))))))))
on Dec 22, 2005
I know of no other way of doing this, dharmagrl, could you please e-mail me so I may e-mail you with a question about joeuser that I do not want to post on here. I know thats not a regular request and has nothing to do with this post I am very sorry for that.

chris.wagoner@sfcc.edu Thanks in advance.
on Dec 22, 2005
OK now one related to this post. I have had 2 spinal fusions. C4-C5 and L5-S1. Both ends are done. And I have to take meds 24/7 for the pain but it has become livable. You get use to it. I have lived with it since 1993 and its service connected. SO I feel your pain. Mine got so bad I was confined to a wheelchair for a while before the last surgery. I got a lot of relief but still have the residualpain running down my left side. Mostly my butt. Hang in there, they can do things like a TENS Unit, Meds (all kinds and some are not narcotic) and therepy, so hang in there.

on Dec 22, 2005
Hope you're feeling better tonight, as I write this, and that there's good news from the doc for you!
on Dec 22, 2005

Mostly my butt.

Must have been that tail bone issue I blogged about!

on Dec 22, 2005

What happened to the Duragesic patch?

Well, I'm back on it.  Now that I'm used to it it's not so nauseating.

Ok, here's the scoop.  I stay on the lowest dose Duragesic patch, but instead of rotating them every 72 hours I change mine every 48.  The third day wasn't really very effective, and I was having to rely on percocet to get me through.  So, still on Duragesic, still on percocet for breakthrough pain.  We've also upped the elavil to TWICE what I have been taking, and we've also added gabapentin.  He said that I have neuropathy, that he sees LOTS of people like me, and that 98% of them have walked out of his office happier than when they walked in.  I know I did.  He's a FABULOUS doctor; even Dave liked him.  His nurse was wonderful, she understood how it is to be in pain all the time and how it affects what you do and say.  He said that it might go away, or it might not.  Either way, he's going to look after me.  we're on the bottom rung of the medication therapy ladder, and there's a way to go before we get to the top and run out of options.

I am so happy, I cannot even begin to tell you.  Dave asked if I could start running with him, and the doc said yes...to take a percocet half an hour before I started to run, but then to have at it and try and get out and be active at least 3 days a week.

I certainly hope this can help your pain

Me too, and from what I've been reading gabapentin is an effective medication with low side effects.  So, I'm much more optomistic.

 

now and then, you get a good Dr. and they give you some relief. I hope this is one of those times for you.

It WAS one of those times!

 

Praying you find not only answers, but also relief from your pain

Thank you, I think that your prayers have been answered.  It sure feels that way for me!

your sister in pain,

Hopefully both of us will be in much less pain soon......

 

dharmagrl, could you please e-mail me

As soon as I get done with thise thread I'll fire you one off.

I got a lot of relief but still have the residualpain running down my left side. Mostly my butt. Hang in there, they can do things like a TENS Unit, Meds (all kinds and some are not narcotic) and therepy, so hang in there.

Mines on the right, and I know EXACTLY what you're talking about.  I AM hanging in there, and in a way I'm glad that you feel my pain because you've had the same surgeries as me.  It makes me feel....not so alone.

Hope you're feeling better tonight, as I write this, and that there's good news from the doc for you!

I am felling better, and there was good news!

on Dec 22, 2005

Ok, here's the scoop. I stay on the lowest dose Duragesic patch, but instead of rotating them every 72 hours I change mine every 48. The third day wasn't really very effective, and I was having to rely on percocet to get me through. So, still on Duragesic, still on percocet for breakthrough pain. We've also upped the elavil to TWICE what I have been taking, and we've also added gabapentin. He said that I have neuropathy,

Can you elucidate on the bolded words for us dummies?

But glad it seems to be you are headed in the right direction!  I think?????

on Dec 22, 2005

Can you elucidate on the bolded words for us dummies?

Elavil is a tricyclic antidepressant.  It also works well on neuropathic (nerve pain).  I was taking 50 mgs at night, he's put me up to 100mgs, starting tonight.

Gabapentin is an anti-seizure medication.  It's also used to treat neuropathy - nerve pain. 

Basically, when the disc in my back herinated, the jelly-like contents of it came out and, over time, calcified.  As they hardened, they put pressure on my sciatic nerve and other nerves that run down my legs.  Because those nerves were under so much pressure for so long, some of them died (which is why I have patches of numb skin on my thighs and my pinkie toe on the left is totally numb).  The ones that didn't die are probably permanently damaged, and it's those nerves that are causing the pain.  Nerve pain like that is called neuropathy.

Does that help any?

on Dec 22, 2005

Nerve pain like that is called neuropathy.
Does that help any?

Very much, and I hope I was not out of line.  God's speed, and I wil pray for you.  It cant hurt!

on Dec 22, 2005
Very much, and I hope I was not out of line. God's speed, and I wil pray for you. It cant hurt!


Not at all, and you're right - praying can't hurt. Just because I'm Buddhist, doesn't mean I don't believe in a god, DG. Actually, it and I have been getting reacquainted recently. I'm not into the traditional Christian version of god, but I do believe in a divine being, a deity, a supernatural force.

So yeah, it and I have been learning a lot about each other of late. Actually, I'm the one doing the learning. It already knew.
on Dec 23, 2005
Best of luck with your therapy and recovery...I know it certainly helps to have your husband there right beside you.
on Dec 23, 2005
double post