Knitting. Yarn. Fiber artistry. More knitting. Nursing school. Hospice work. Death and the dying process. Phoenix Raven's. Knitting. Yarn. Oh, and Life As An Air Force Wife.
Published on July 26, 2004 By dharmagrl In Misc

I need your help...

..the 5 month old baby boy across the street from me has just been diagnosed with an occipital plate deformity.  The back of his head is flat, and the bone plates are fused together (which usually doesn't happen until much later).  This will eventually create pressure on his brain matter, and will cause his features to become more and more deformed as he grows older, because the bones at the front of his head will still be growing normally whilst the occipital bones won't. He's having a CT scan next month to determine if he needs this surgically repaired (which is a pretty scary procedure) or if the best bet is to have him equipped with a 'halo' type device that screws into his head.  He'd have to go to the hospital every other week to get this 'halo' adjusted and thereby encourage the bones in his noggin to re-shape.

His parents, Tom and Nova Smith, are some of the best people I've ever come across, and Jordan is an absolute little angel.  Tom was supposed to be separating from the military in February next year - but that's all up in the air now because of Jordan's condition.  Tricare military medical insurance also may not cover the entire cost of the 'halo', leaving Tom and Nova with thousands of dollars of medical bills.  They have family that are more than willing to help them out, so the money part really isn't the biggest issue...the trauma and stress and pain that they'll all have to endure is.

So, good people of Joe U, I'm asking you to pray to your gods (and goddesses) and ask for healing and love to be sent Tom, Nova and Jordan's way.  If you're like me, and you don't pray to any deity, then please try and stir up some good vibes and karma and send them instead.  They need all the spiritual help they can get.

If you'd like to verify that this is an actual family, then plese email me and I'll be more than happy to provide you with verifiable information.  Whilst I'm sure they'll appreciate my posting this request, I'm not so sure they want their address and phone number posted on the internet.  (It makes me very sad that we're all having to add disclaimers to these requests)

Thanks in advance for all your help...and if you'd like to leave a message here for them, please do.  I'll be sure to pass it on to them.

 


Comments
on Jul 26, 2004
Tom, Nova, and Jordan,

While we only know you through a friend's blog, we want to let you know we are praying for you. We know how trying a child's medical conditions can be, and pray for the best for you and your son. God be with you.

God bless,

Gideon MacLeish
on Jul 26, 2004
I will gladly add my prayers to those being offered in their behalf. May the collective faith of those here and elsewhere who are keeping you in mind buoy you up and carry you through this trial.

Peter
on Jul 26, 2004

Aww, Gideon!

That made me tear up just reading it!  I'll print it out and run it over there tomorrow.

Thank you so much.

(How's your wife and soon-to-be-young-un doing?)

on Jul 26, 2004

Thank you, Dev.

I'm going to see if I can get their permission to post a picture of Jordan on here so you all can see what a little sweetie he is....

on Jul 26, 2004

For now, here's the link to his birth announcement and picture from the local hospital:

http://www.rcrh.org/Baby/BabyView_app.asp?BabyID=1631

 

on Jul 26, 2004
Wow, what a cutie. He is in our thoughts.

Peter
on Jul 26, 2004
(How's your wife and soon-to-be-young-un doing?)


They're doing well, thank you very much for asking...We're missing them very much, being as far away as we are and all, though (the girls are pulling together wonderfully, but they're still little girls, and we have our moments where they definitely need mommy). S'ok, though, they will enjoy the weekend (and I am seriously trying to plan a special trip after we get back to "normal" and the finances get back in order).
on Jul 26, 2004

the girls are pulling together wonderfully, but they're still little girls, and we have our moments where they definitely need mommy).


I know exactly what you're talking about, but in reverse.  Our boys are tough little dudes and I'm playing dad as best i can...but there are just some times when they little boys need their dads, dig? 


How long does she have to go until it's safe to let her labor and deliver?

on Jul 27, 2004
Dear Lord,

We pray for your Child Jordan, that you may surrond him and his family in your healing arms, and protect them with your mighty hand. May they feel the love of you, and those around them and may it be a guiding light. Bless this child and help him, so he can be a messenger of light.

In your healing name we pray. Amen